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Things the Bean Does That Bug the Heck Out of Me!

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ladybugEvery parent has certain buttons that their kids push quite easily.  No matter how much we adore our kids, we don’t always love all the little annoying things they do. So, in the spirit of documentation, I give you “Things the Bean Does That Bug the Heck Out of Me!”

Pinching – The Bean doesn’t pinch in a mean way.  She’s not upset or mad; it’s something she does when she’s cuddly or when she’s trying to get my attention…and I can’t stand it!  She grabs tiny sections of skin in the most sensitive places and pinches, sometimes gently and persistently, and sometimes really hard.  I’ve tried to just tolerate it and see if it stops on it’s own, but I just can’t.  I tap her hand and say “no pinching”, I squeeze her hand, I pinch her back – all to no avail.

Throat punch – this is another one that she’s not doing with the purpose of hurting anyone, but it really sucks.  It almost seems like an uncontrolled movement, except that her aim is exceptional.  Sometimes she does it with the tips of her fingers; this is a self defense technique we learned in Taekwondo, and it’s very effective.  Other times it’s a back fist to the throat when we’re lying down, or with the heel of her hand as she leans the full weight of her body on her hand trying to get

The Elbow Lean – This is almost as painful as the throat punch.  The Bean tends to tends to lean on my chest with her elbows, once again putting her full weight into the experience.  I’m surprised my chest isn’t black and blue.

Shrieking in the Car – I think every child goes through a stage where they’re learning how to regulate their volume, and for a time, loud seems to be the only option.  Whether she’s happy or upset, the Bean can get shockingly loud in the car, and I’m trapped in my seat belt on the freeway yelling at her to stop yelling…oh the irony.

angry-butterfly-14083658Temper Temper – Because of her speech delays, at 4-years-old the Bean often doesn’t have the words or the patience to tell me what she needs or wants.  She does try sometimes, which can be frustrating for both of us because she’s saying a word out of context without much for consonants.  When many of her words sound the same, it’s a guessing game, and as she gets older her wants and needs are becoming more complex.  This is all par for the course.

The part that bugs me is when she doesn’t even try to communicate, just breaks down in tears or a tantrum for no obvious reason.  I haven’t even had the chance to say no before she’s having a tantrum about it.  Figuring out what she wants AND trying to teach her nicer ways to ask for what she wants become mutually exclusive tasks because the more upset she is, the less she can listen or talk to me.   I’m learning to wait it out: to tell her that I can’t understand her when she’s crying/whining and when she’s ready to tell me what she wants, I will do my best to understand her.  It sometimes takes a while.

013Everything in the mouth – Most kids grow out of this phase when they’re three – at least I assume so because all those toys and games with small pieces are labelled 3+.  The Bean, however, still explores a lot of things with her mouth: stones from the driveway, small pieces from toys, large pieces from toys, blocks, anything from her toy kitchen, the water and bubbles from her bath, finger paint, playdoh, as much dirt and sand as she can get away with before I freak out, and even her own poop from time to time.

Mamaaaaahhhh – I waited for what seemed like forever for the Bean to be able to say “Mama”.  Now, it comes out of her mouth in rapid succession, often in a whiny tone, and for an extended period of time.  In the car: “Mamaaaahh”; when I’m making dinner: “Mamaaaahh”; when I’m trying to have a conversation with a friend: “Mamaaaahh”; when my Sweetie is taking her off my hands for a few minutes, but I’m still around: “Mamaaaaah”.  It’s annoying to even write it.  I am thrilled to be “Mama”, but I don’t really want to be “Mamaaaaahhh”!

Now I totally get that these are things that all parents go through with their young kids.  But parents of typical kids typically don’t deal with these for the duration of time that parents of special needs kids do.  It’s pretty exhausting to still be dealing with a toddler at 4 years.

DSC00675Even so, I’m super proud of how much the Bean has learned in the last year. At three-years-old, she was just beginning toddler-hood.  Now she’s a mix between toddler and pre-schooler, and she learns and grows more every day. Her vocabulary is increasing, she is able to do more things on her own, she’s starting to play independently, and she’s got this great attitude about life in general.

DSC00665I’m pretty sure that one day she won’t be beating me up on a regular basis.  Not all special needs parents can say that.  I’m also pretty sure that her vocabulary and speaking skills will improve, and one day I’ll be able to understand her a lot more clearly.  I have confidence that eventually she will be potty trained and I won’t be racing to get her diaper changed before she manages to get the poop into her mouth.

So while I don’t think I’m going to be able to “enjoy EVERY moment” of these early years, as encouraged to by parents whose kids grew up too fast, I certainly have a lot to be grateful for now, and a lot to look forward to in the future.


Just TALK to me: Frustrations in Toddler Communication

As much as I love my Bean and as proud as I am of her, there are days that feel too hard.  I’m sure most parents feel that way. We’ve had a few of these recently, probably in part because she’s been off from school for the holidays, and our routine is out of whack.


Photography by Sasha Georgeson

These days, one of my biggest challenges with the Bean (besides my lack of sleep) is communication.  She’s going to be four years old in March, and while she’s come a long way (baby), figuring out what she wants is still often a guessing game.  Yesterday morning, she woke up way too early and was wailing about something.  Now, most kids her age can say, “Mommy, I want to get up and play”, or “I’m hungry. I want some cereal for breakfast”.  But this morning, all I got was a cranky, “Naaahh”. Sometimes this means, “I’m hungry, I want a snack”; sometimes it means, “I’m uncomfortable – something’s wrong”; yesterday morning I think it meant, “if you make me go back to bed I’m going to make sure you’re as miserable as I am”.

All babies start out being unable to clearly communicate what they want.  Their parents learn to interpret their cries and it starts to get easier, and at the same time, those babies learn to talk.  By one year old, the average child can string together a few words and start to control their world through language. They figure out that “more milk” gets them what they want faster than just saying “more” on it’s own.

The Bean took a little longer than most to get those first words, although sign language really helped.  Learning the signs for her basic needs, and being able to teach them to her, was a huge relief.  “Milk”, “food”, “play”, “all done” and “more” were indispensable tools in our arsenal, and we learned a bunch of other signs that were part of her world and helped her to talk, but were not necessarily included in the “needs” category.

However, as her wants and needs get more complex, it’s getting harder and harder to interpret them with the few words she uses regularly.  Her vocabulary is growing a lot more quickly these days, and when the Bean is calm, she can actually put together five-word sentences: “I want more milk please” (Sounds like “Ah wah moh mih eee”).   Unfortunately, as soon as the Bean is upset, when she needs to be able to communicate most clearly, she forgets that she has any words at all.


Photography by Sasha Georgeson

According to Dr. Harvey Karp (author of the “The Happiest Baby-” and “The Happiest Toddler on the Block” books), toddlers become “cave kids” when their emotional state gets too elevated.  Their brains go into a mode that doesn’t allow any sort of reason to leak through.  It seems, though, that the Bean’s emotional state still gets heightened immediately, when most kids her age are getting to the point where they can control their emotions a little better.  For example, the second a show she’s watching is over, she’s screaming, “Moe, moe, moe” over and over again as if it were the end of the world.  As with all toddlers, we’re working on the concept of patience.  In this particular situation, the context is so specific that I know exactly what she wants, and often, even if I say, “No, we’re all done watching TV” , she repeats “Ah duh” and is happy to be led to another activity.  But all too often, I have no context to her crying and it takes a while to figure it out.

I think this time in the Bean’s life is particularly difficult for communication because she has many of the needs and wants of kids her age.  She also gets frustrated very quickly, which is totally normal and appropriate for her developmental age, if not her chronological age.  But her disadvantage is that she doesn’t have the vocabulary to go with those more complex needs and her heightened emotional state.  Her frustration gets exacerbated because it takes me longer to understand her, and then we cycle into a downward spiral of louder crying from the Bean and increased anxiety on my part, and nothing getting accomplished until I finally stumble on the thing she wants.  AHHHHH!

I need to keep reminding myself that all my friends with preschoolers went through this with their kids when they were still toddlers, it’s just that we’re doing it later and it will last longer.  Even though the Bean is a preschooler, she’s also still a toddler, and that’s just the way it is for us.  It is sometimes comforting to tell myself that God gave the Bean to us because we are the best parents for her needs.  I believe that I am becoming a stronger person and a better mother as I learn from each situation we come across.  I’m realizing more and more that I also can’t do this without God and my husband.  If I were a single mother, I think I might go over the edge.  And I can’t even imagine what adding another baby to the situation would do to us, when the Bean still needs so much help, so that’s definitely off the table.

Thankfully, there are plenty of days when things go very well and the Bean is a happy-go-lucky kid with a positive attitude.  Even the difficult days aren’t all bad – we always figure things out eventually and move on.  Some days include tears in my eyes or frustrated pillow-punching, but most don’t.  Some days I feel supported and encouraged by friends and family, and some days I feel like I’m the only one in the world dealing with these things, even though I know I’m not.  It helps to write about it;  it helps to read about it; it helps to discuss particular issues with her teachers and therapists; and it definitely helps to get together with other moms and discuss everything from how long it’s been since we’ve had a bubble bath to discipline strategies for our toddlers.

I am supremely grateful for all the support and encouragement I receive from my friends, family, and acquaintances.  And to tell the truth, the Bean herself is the best reward  and encouragement for all my hard work.  She is usually a happy, cuddly, funny little girl who makes me feel like I’m the most important person in the world.

Leaps and Bounds

image011 (1)My Bean is growing in every way all of a sudden.  She has moved up a size in clothes, which is super exciting for me because I was getting tired of dressing her in her 12 month stuff.  For those not familiar with the Bean, she’s tiny – 3 3/4 years old and now wearing 18 – 24 month clothes.  What mom doesn’t love new clothes, even if they’re for her child and not for herself?

Walking is the Bean’s favourite hobby.  She toddles around everywhere, dancing if there is music and running (sort of) if she’s super excited.  She sure keeps me hopping when we’re in public – her curiosity knows no bounds, so she’s off the second I put her down. A whole new world has opened up to her and it is so much fun to help her explore and discover new things.

She keeps herself busy while I’m working in the kitchen by removing plastic containers from the cupboard and distributing them around the house.  She loves to “help” me wash dishes, standing on a chair at the second sink with her own bowl of sudsy water.  While it makes a huge puddle on the floor, and she keeps stealing the clean dishes from the rack and putting them back in my dishwater, it can be tremendous fun.  I still eventually get the dishes done.

Laundry is a similarly fascinating chore.  Bean likes to push the buttons on the washer and dryer, so after we load them, she closes the door and gets them started.  She recently started taking clean clothes out of the laundry basket and putting them away in her drawer. As long as I’m one step ahead of her, she manages to put the right things away in the right places and I don’t have to reorganize when she’s done.

023The challenge of communicating with the Bean is starting to get a little easier.  She attempts to copy everything we say, and it’s been a blast finally being able to teach her new words and have her respond.  With Christmas coming up in a few days, we were thrilled that she has learned to recognize and sort of say “Santa”.  We’re still working on “Baby Jesus”.  She had a Santa cupcake at her Christmas party, and since she associates cupcakes with birthdays, she wanted to blow out a candle.  I used that opportunity to remind her that it is Baby Jesus’ birthday, and we sang and pretended to blow out a birthday candle.  So cute.  However, the fact is that Santa is a much more compelling symbol for a toddler – bright colours, concrete concepts, and presents…the importance of the birth of Jesus is a little too abstract for her yet.

My favourite part of parenthood these days is playing with the Bean.  She has a great imagination and loves to make jokes and laugh.  Her jokes usually involve some sort of slap-stick comedy, and she giggles uncontrollably at her own antics.  She loves to be tickled and startled, asking for “moh” (more) over and over again.  At the playground, she enjoys climbing the structure and sliding with me down the big-kid slide.  When we get to the bottom, she pretends to be a chicken as she waddles back to the stairs again, flapping her wings and clucking, “buh, buh, buh”.

128Preschool continues to be an awesome experience for the Bean.  Her teacher is on maternity leave, but they’ve had a string of wonderful substitutes in the meantime, and the teacher’s assistants are a stable presence for the kids in their teacher’s absence.  Bean is apparently the “angel” of the class – the sweetest and least disruptive.  Of course she is – she’s her mother’s daughter!  But seriously, I feel very fortunate that her diagnosis doesn’t come with an expectation of major behavioral challenges.  She certainly gets frustrated and can be persistent about having things her way, but unlike some of the other kids in her class, she doesn’t tend to lash out physically or flop down on the ground in protest.  At her most aggressive, she’s just really loud and squirmy.  I get more resistance from her at home than they do at school, I think, but that’s pretty normal for most kids.

014Mostly, these days, she feels like a delightful 2-year-old.  It seems appropriate to me that her mental age seems to fit her physical age, even if they don’t correspond with her chronological age exactly.  She’s starting to get interested in dolls and playing dress-up.  If they didn’t make her also do other activities, she would be a permanent fixture in the play kitchen at school.  At home she loves to build with and knock down blocks, pull stickers off their sheets and stick them everywhere, have tea parties with Elmo, and get dirty in her sandbox.  When I’m digging around in the garden, she joins me, although a lot of soil still goes in her mouth.

Our biggest challenge with the Bean continues to be her sleep habits.  Currently, she mostly sleeps with us in our bed.  She won’t settle and fall asleep at night time without one of us lying beside her.  If we do put her in her own bed, she wakes up an hour later and we have to do it again.  She still takes naps but if she sleeps for more than an hour in the afternoon, she’s up until 9 or 10 pm, which means that my Sweetie and I don’t get much of an evening together.  We’re working on some strategies to get her sleeping consistently in her own bed.  She is too persistent at this point for the Cry-It-Out method, and frankly, I’m too soft-hearted to be able to stand it.  I think part of it is that she’s just a very physically affectionate child.  She needs the reassurance and comfort of a snuggle – I say there are worse things in this world than that, for sure.

Potty training is in the concept stage right now.  She’s starting to make it known when she needs a diaper change.  We’re working on recognizing when she’s actually going so we can start to preempt it and get her to the toilet.  But she doesn’t like sitting on the potty or on her little toilet seat, so we’re trying to get her used to that first.  As with most things in the Bean’s life, it will take a lot more time than it does for most other kids.  That’s just the way it is for us.  And in the meantime we’re helping to keep Pampers and Tide in business.


I predict that the coming year will be one of even bigger leaps and more impressive bounds.  Our Bean will be turning 4 in March – it’s surreal to think about.  I feel like I’m finally coming into my own as a mother.  The extended infant stage was not my ideal situation…as much as I love babies, having one for 3 years while all the other kids are changing rapidly was a little disheartening and quite difficult for me.  As always, though, when I look for the silver lining it’s there.  Most mothers mourn the speedy passing of the infant stage.  I got to coddle and snuggle and baby my little one a whole lot longer than most moms before she became a wriggly wild thing.  Every milestone reached tastes that much sweeter because of the struggle it took to get there.  I don’t take anything about the Bean for granted.  I marvel at how far she’s come in the last year and I feel grateful for all the help we have along the way.

What a blessed life we live!

Maybe Not My Proudest Parenting Moment

Today I stumbled across a section of the Family Matters blog site that focuses Raising a Child with Special Needs.   I read the most recent post and found myself in tears.  After a break to collect myself, I went back to the blog to explore further, and found myself in tears again and hugging the Bean close.  Okay, something is going on with me today.  Obviously I have some unresolved pain around the Bean’s Journey so I decided to explore it…in public on the blog of course.

In general, I’ve tried to remain positive on this blog:  I acknowledge challenges but try to put a positive spin on them.  And I don’t think there is anything wrong with that; there is something to be said for maintaining a positive attitude.  But it would be dishonest to pretend that I always deal with those challenges in a constructive way.

One of the Bean’s persistent “bad” habits is pinching.  She finds the most sensitive bits of skin on my body, such as the tender skin at the back of my upper arm, on my throat, or on my breasts, and squeezes them hard in her considerable pincer grasp.  She’s not doing it to be mean or spiteful.  It’s something she does to comfort herself when she’s upset, or to show her affection, or to get my attention when I’m focused elsewhere.  It almost seems totally unconscious.

I hear that this type of pinching is not the exclusive domain of Special Needs kids – my friend’s 3-year-old once pinched her regularly, and her 1-year-old currently tortures her with pinches.  But with the Bean, the habit is not going away as she gets older.  I tell her that Mommy doesn’t like her pinching and ask her to stop, but that doesn’t work at all.  Sometimes I make a joke about it and tickle her to distract her, but that only works temporarily.  I pull myself away, or tap her hand to remind her that pinching is not okay, but she only goes back to it.

These emotions portrayed by Jane Lynch show exactly how I feel when the Bean overwhelms me. (photo by Howard Schatz)

Yesterday, I was trying to make dinner and the Bean was being needy and clingy.  I had been trying to keep her entertained while doing dinner prep and nothing was keeping her attention for more than a couple of minutes, not even the all-engrossing television.  I got frustrated and snapped at her for the constant whining, feeling totally overwhelmed.  My Sweetie came home and took her off my hands for a few minutes (thank goodness!) but then left to dress down and get ready for dinner.

The Bean continued to complain, and I finally gave in and carried her on my hip while I stirred the food on the stove.  As usual, she started to pinch and I used my well-worn ineffective tactics to no avail (definition of insanity: doing the same thing and expecting different results?).   Annoyed, but not yet angry, I very calmly decided to teach her a lesson.  She obviously did not understand what I was telling her about the pinches hurting Mommy.  So I evenly said to her, “This is what your pinches feel like”, and I pinched a small portion of her tender skin between my thumb and forefinger.

She looked at me in shock for a second before her lower lip puckered out and she started to cry – a good honest cry – no whining anymore.  My Sweetie came into the kitchen to see what else needed to be brought out to the table and I gave him the Bean, explaining what I had done.  I felt a little bad for making her cry, but only a little.  This girl pinches me A LOT!  He comforted her, we had dinner, and then I put a very tired Bean to bed.

Looking back, I’m not sure how I feel about that moment.  Was it wrong of me to pinch my little girl?  I didn’t do it out of anger, but as a genuine attempt to help her understand what she was doing to me.  Still, was there a less violent way for me to teach that lesson?

I’d love any suggestions from my wonderful readers!